In this section you will find information about how CRY is working with coroners and pathologists to help families after a young sudden cardiac death. You will find related articles and press releases listed below, including articles written by coroners and pathologists about why and how they are involved in cases of young sudden cardiac death.
| Source | Article |
|---|---|
| CRY | CRY-funded research published in leading journal |
| An insightful new study comes under the spotlight as CRY marks a decade of funding expert pathology. The latest research funded by CRY is helping to transform the way we understand conditions that can cause young sudden cardiac death. | |
| American Heart Association Journal | Miles C, Finocchiaro G, Papadakis M, Gray B, Westaby J, Ensam B, Basu J, Parry-Williams G, Papatheodorou E, Paterson C, Malhotra A, Robertus JL, Ware JS, Cook SA, Asimaki A, Witney A, Chis Ster I, Tome M, Sharma S, Behr ER, Sheppard MN |
| Sudden death and left ventricular in arrhythmogenic cardiomyopathy | |
| American Heart Association Journal, January 2019 {Abstract} | |
| Journal of the American College of Cardiology | Gherardo Finocchiaro, MD, Elijah R. Behr, MA, MBBS, Gaia Tanzarella, MD, Michael Papadakis, MBBS, MD, Aneil Malhotra, BSC, MBCHB, PHD, Harshil Dhutia, BSC, MBBS, Chris Miles, MBBS, Igor Diemberger, MD, PHD, Sanjay Sharma, BSC, MBCHB, MD, Mary N. Sheppard, MBBCH, BAO, BSC, MDc |
| This study sought to describe the clinical and pathological features of anomalous origin of a coronary artery (AOCA) in sudden cardiac death (SCD) victims. | |
| Journal of the American College of Cardiology, 2019 {article} | |
| CRY | Interview with Professor Mary Sheppard |
| CRY Update Brochure 76 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 75 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| European Journal of Preventive Cardiology | Finocchiaro G, Papadakis M, Dhutia H, Cole D, Behr ER, Tome M, Sharma S, Sheppard MN |
| Obesity and sudden cardiac death in the young: Clinical and pathological insights from a large national registry | |
| European Journal of Preventive Cardiology, March 2018 {Abstract} | |
| Journal of the American College of Cardiology | Michael Papadakis, Efstathios Papatheodorou, Greg Mellor, Hariharan Raju, Rachel Bastiaenen, Yanushi Wijeyeratne, Sara Wasim, Bode Ensam, Gherardo Finocchiaro, Belinda Gray, Aneil Malhotra, Andrew D’Silva, Nina Edwards, Della Cole, Virginia Attard, Velislav N. Batchvarov, Maria Tome-Esteban, Tessa Homfray, Mary N. Sheppard, Sanjay Sharma and Elijah R. Behr |
| The Diagnostic Yield of Brugada Syndrome After Sudden Death With Normal Autopsy | |
| JACC, March 2018 {Abstract} | |
| CRY Update Brochure 74 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 73 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| Journal of the American College of Cardiology | Hariharan Raju, Michael Papadakis, Greg Mellor, Sanjay Sharma, Mary N. Sheppard, Elijah R. Behr |
| Utility of Post-Mortem Genetic Testing in Cases of Sudden Arrhythmic Death Syndrome | |
| JACC, May 2017 {Abstract} | |
| CRY Update Brochure 72 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| Journal of the American College of Cardiology | Gherardo Finocchiaro, Michael Papadakis, Elijah R. Behr, Sanjay Sharma, Mary Sheppard |
| Sudden Cardiac Death in Pre-Excitation and Wolff-Parkinson-White | |
| JACC, March 2017 {Abstract} | |
| CRY | Research Highlights 2016 |
| CRY Update Brochure 71 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 70 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| Journal of the American College of Cardiology | Gherardo Finocchiaro, MD; Michael Papadakis, MBBS, MD; Jan-Lukas Robertus, MD; Harshil Dhutia, MBBS; Alexandros Klavdios Steriotis, MD, PhD; Maite Tome, MD, PhD; Greg Mellor, MBChB; Ahmed Merghani, MBBS; Aneil Malhotra, MBBChir; Elijah Behr, MBBS, MD; Sanjay Sharma, MBChB, MD; Mary N. Sheppard, MBBCh, BAO, MD |
| Etiology of Sudden Death in Sports | |
| Insights from a United Kingdom Regional Registry | |
| CRY Update Brochure 69 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 68 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 67 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 66 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 65 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 64 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY | CRY consolidates specialist services ‘under one roof’ |
| The CRY Centre for Cardiac Pathology moves to St George’s, University of London, alongside the charity’s world-renowned Centre for Inherited Cardiovascular Conditions | |
| CRY Update Brochure 63 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 62 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| Europace | de Noronha, S.V., Behr, E.R., Papadakis, M., Ohta-Ogo, K., Banya, W., Wells, J., Cox, S., Cox, A., Sharma, S. and Sheppard, M.N. |
| “The importance of specialist cardiac histopathological examination in the investigation of young sudden cardiac deaths.” | |
| Europace 22nd October 2013 Abstract | |
| British Journal of Sports Medicine | Hill, S.F. and Sheppard, M.N. |
| “A silent cause of sudden cardiac death especially in sport: congenital coronary artery anomalies.” | |
| British Journal of Sports Medicine 5th September 2013 Abstract | |
| CRY Update Brochure 61 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 60 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 59 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 58 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY | ‘Scrutiny panel’ welcomed in investigation into failings of Teesside Coroners Service |
| Alison Cox MBE, Chief Executive and Founder of CRY, comments on the investigations into the failings of the Teesside Coroners Service | |
| CRY Update Brochure 57 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 56 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 55 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 54 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 53 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 52 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 51 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 50 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| National Pathology Week | National Pathology Week podcasts |
| Dr Mary Sheppard was involved in several discussions at the Royal Geographical Society during National Pathology Week 2009. | |
| Arrhythmia Watch | Call for post-mortem genetic testing to become routine in cases of sudden death |
| At a meeting on Sudden Cardiac Death (SCD) at the Royal Society of Medicine, sponsored by Cardiac Risk in the Young (CRY), doctors have called for coroners to routinely request consent from relatives to allow small amounts of tissue to be retained from young people (under 35 year olds) who die suddenly from heart disease or without explanation. | |
| CRY Update Brochure 49 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Update Brochure 48 | Report from the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY website | New roles for Dr Mary Sheppard |
| Announcement of two important new positions granted to Dr Mary Sheppard. | |
| CRY Press Release | Leading heart charity welcomes new initiative to ‘track’ sudden cardiac death in the young |
| National database hopes to cut deaths by making families & coroners more aware of ‘heart health history’ | |
| An announcement from the Department of Health and a collaboration of pathologists and heart experts has received praise from the campaigning and awareness raising charity, Cardiac Risk in the Young (CRY). | |
| Department of Health Press Release | Launch of the Sudden Cardiac Death pathology database |
| In most middle-aged and older adults, sudden cardiac death is caused by coronary artery disease. In contrast, sudden cardiac death in individuals aged less than 35 years is frequently caused by inherited disorders of cardiac muscle (cardiomyopathy) and cardiac rhythm (ion channelopathies). The genetic nature of many of these diseases means that the relatives of young sudden cardiac death victims are at risk. | |
| The Bulletin of the Royal College of Pathologists | Sudden cardiac death in the young and helping bereaved families |
| Dr Mary Sheppard has been working as a specialist cardiac pathologist for the past 12 years at the Royal Brompton Hospital. Many people think cardiac pathology is boring, lacking the diagnostic challenges of surgical pathology. Even colleagues have been known to state it is “easy”, based upon ischaemic heart disease where coronary arteries and diseased muscle is all that is needed to be looked at with the naked eye. However, there is also a very personal and moving aspect to the job, which Dr Sheppard shares with us here. | |
| CRY Update Brochure 47 | Launch of the CRY Centre for Cardiac Pathology (CRY CCP) |
| CRY Press Release | New labs ‘promise’ answers for hundreds of bereaved families |
| The agonising wait endured by many families following the sudden – and tragic – death of a child or partner could soon be over as London opens the UK’s first ever ‘fast-track’ pathology laboratories to help analyse the causes of unexpected cardiac death in ‘apparently’ fit and healthy young people. | |
| BBC News website | ‘My fight to find out why Adam died’ |
| Adam Payne was just eight years old when he collapsed during a football match and died. For months nobody was able to tell his family why it had happened, but doctors said they suspected epilepsy to be the cause of death. | |
| BBC News website | Fast-track lab for sudden deaths |
| A new national fast-track laboratory is aiming to offer definitive explanations of sudden cardiac deaths in people under the age of 35 within a few weeks. | |
| The Guardian | Under the microscope |
| “Because we don’t have direct patient access we are considered the backroom boys,” says Dr Mary Sheppard, while sipping coffee in the Royal Brompton Hospital cafe. | |
| CRY Press Release | Cardiac Risk in the Young (CRY) invests £300,000 to advance understanding of genetic silent killer – young sudden cardiac death |
| Two years on from publication of the NHS Chapter 8 strategy on Arrhythmias and Sudden Cardiac Death, leading charity Cardiac Risk in the Young (CRY), has committed to fund coroner referrals to an expert cardiac pathologist when a young person dies suddenly and the cause is unknown. | |
| CRY Press Release | Heart Charity Cardiac Risk in the Young announce new Initiative to help prevent Sudden Cardiac Death in the Young |
| At this year’s annual Cardiac Risk in the Young (CRY) reception, as part of the CRY Raising Awareness Week, CRY will be announcing a major new initiative funding research which will be conducted by Dr Mary Sheppard of the National Heart and Lung institute at the Royal Brompton Hospital. | |
| CRY families | Why is CRY’s coroner / pathology initiative so important? |
| “This section contains quotes from CRY families, illustrating why CRY’s coroner / pathology initiative (see Press Releases above) is so vital.” | |
| Anonymous Coroner | Why is the Coroner Involved? |
| “Any death of which the cause is not immediately known had by law to be reported to the Coroner.” | |
| Anonymous Pathologist | Sudden Unidentified Death Syndrome & the Pathologist |
| “Once or twice a year I see previously fit young people who die suddenly with no apparent cause.” |
